Ruby & Otto
This story discusses trauma, medical emergencies, and death. I have chosen not to soften or sanitise what happened. Some descriptions are raw and may feel uncomfortable. Please take a moment to ensure you are in the right headspace before reading, and step away if you need to.
A Mother’s Journey: From Hope to Heartbreak
I was born with a uterine anomaly called a septate uterus. Four years after having surgery to remove the septum inside my uterus—a procedure that improves fertility and reduces the risk of miscarriage—I became pregnant spontaneously. Most of my pregnancy was spent consumed by fear, having been warned that scar tissue carried a risk of miscarriage. But week after week, my baby grew perfectly, and the relief was immense.
At 24 weeks, I was placed on partial bed rest. Every week felt like a victory, a step closer to safety. By the time I reached around 32 weeks, Otto’s room was ready, his car seat was installed, and the bags were packed.
At my 34-week check-up I was told I was out of the danger zone, he was growing great, everything looked good for my health, and the risk of prematurity was no longer alarming. For the first time in months, I let myself breath and enjoy my experience of pregnancy. I walked 5 minutes down to the beach and remember being so happy, so carefree for the first time in 7 months. I didn’t know those hours were the last carefree moments I’d ever feel.
The Onset of Rupture
The next day, a Saturday, at exactly 35 weeks I had a contraction-like tightening followed by a very intense pain high in my abdomen that wrapped around to my upper back. It came after a period of intimacy, and it was unlike anything I had felt in the pregnancy so far. I felt nauseous, and had the sensation that I needed to push but couldn’t quite grasp if I needed the bathroom or to give birth. Instinctively I went to run a bath .
Lying in warm water and with my partner pouring hot water over my back, the pain gradually changed. It moved from a sharp, overwhelming pain in the upper abdomen to something that felt more like the contractions that I could recognise from having strong period pains, in my lower belly and back. After a while, these eased off. When I looked at my bump, it seemed different. I felt narrower, and my belly seemed to have dropped forward and down. When I sat, I could clearly feel my baby’s head very low in my pelvis. I told myself he must simply be getting ready for birth.
I spoke to my mum who told me to head to the hospital, her best friend who was a midwife for over 30y mentioned I needed to get my scar checked, at the time I didn’t know what she was referring to. I decided to text my own midwife for her opinion, but she was reassured that I was losing no liquid or blood.
We drove to my partner’s parents’ home to spend the afternoon. There, the same terrible pain came back again. My mother-in-law suggested it might be trapped gas, something common in pregnancy, but it didn’t feel like gas, the pain was different. I got into the pool, which helped a bit, and once the worst had passed, we continued the day, had a meal, and went to the cinema with a friend. I still had abdominal discomfort. The baby’s movements were unpleasant as my stomach felt bruised all over, and I did not feel well, but the more severe pains would come and go.
On the way back from the cinema I called the maternity emergency line. On the phone, I was told that as long as I wasn’t losing fluid or blood and the pains were on and off, there was no reason to panic.
Even so, I asked my partner if we could return home, because the pain was still worrying me, and I wanted to be close to the hospital where they had all my medical history in case of an emergency.
The next morning, another major wave of pain hit, again with nausea. I went back into the bath but this time it felt clearly wrong. The pain reminded me of a previous severe vaginal infection: the severe pain, the need to push, the nausea. I asked to be taken to the emergency department. I got checked, but the ultrasound and monitorings were reassuring. I was given the choice to stay 24h or leave. The Saturday prior I had gone to the hospital at 3am for reduced movements that ended up being nothing. I started to feel that I was being over the top and wasting precious medical time and facilities. I chose to go home, being reassured that I’d be called in if any of the blood results looked worrying.
On the way home, I suddenly felt very unwell I asked to stop the car. I was doubled over in pain and ended up vomiting on the street. After the episode calmed a little, we left. We never even considered going back to the hospital; they had just told us I had nothing.
The Descent into Crisis
Later that day, after napping for a few hours and feeling better, I was adamant to get every detail finalised. Our baby was on his way, and we still hadn’t agreed on his full name. Suddenly, the pain returned in a very different way. I stood up without saying a word and headed straight to the bath again, hoping warm water would help. This time the pain was overwhelming. I started moaning and soon I was vomiting, shaking, and unable to find any position that made it bearable. My partner was trying to help. He had attended a fathers’ class where they were told not to come to the hospital too early and to wait until contractions were regular. It was our first baby; we had no real reference for what was “normal” and what was not. He tried to time the contractions, although I tried arguing that the pain wasn’t contractions, but I was too weak to explain my reasoning (contractions should feel like intense period pains with releases, not nonstop). While I was saying “I can’t do this”, he was being supportive, cheering me on, neither of us really understanding what was happening.
After 2 hours of constant pain and vomiting, I knew this was not normal labour. I remember thinking that even if birth is supposed to be extremely painful, I wasn’t supposed to be in labour yet and therefore it shouldn’t be this bad. I asked him to call the hospital again. This time, they told us to come in.
I asked my partner to grab our bags and to clean up the sick, thinking we were going to come back with our baby in a few days, not wanting the whole apartment to smell.
At the maternity unit, I was in agony, on the floor in the waiting room, throwing up in the bowl I brought with me, before a nurse came to take me into the monitorung room. I remember saying how hot I was, asking my partner to spray me with water mist, how the elastic band of my skirt was so painful, I asked him to remove my clothes from my bottom half. The monitoring belt pressed on my abdomen and made the pain worse. The baby’s heart rate initially looked fine. The midwives were following standard protocol asking for documents and consent, I felt furious, I was continuously vomiting and being asked things I considered not to be not important at all at the time, all I wanted was for someone to make the pain stop and to understand what was happening. I could barely express myself; all I could bring myself to say was how the symptoms felt similar to a vaginal infection.
Lying on my back, I felt the urge to vomit again and suddenly sat up to reach the bowl. The monitor started beeping, and a midwife came in, scolding me for continuously moving, saying it was messing with the sensors and I needed to stay lying down. I remember thinking how ridiculous it was to ask someone who is vomiting uncontrollably to stop moving.
She left the room, and I continued to throw up. At some point everything felt less intense and soon after I heard the sound of the monitor again and turned my head: my baby’s heart rate had dropped down to 60bpm. I told my partner to call for someone. He thought at first it might just be the sensor that had slipped and tried to adjust it just as the midwife had done moments before, but I insisted. From there, it was obvious something was very wrong. They had not yet called for the doctor, and so we waited for her to arrive to proceed with an ultrasound. It only took a few seconds of scanning my belly for her to call a code red.
Within moments I was undressed, moved onto another bed, and rushed to the operating theatre. Someone briefly mentioned an emergency caesarean and I stared at my partner in shock and fear. I was wheeled to the operating room and remembered the anaesthetist’s face, the fear in his eyes, and the way he stroked my forehead while trying to be reassuring, telling me they had to act very quickly and that I needed to breathe deeply into the mask. I realised then and there that I was dying. In my head I repeated, “Save ME.” I have always been superstitious and instinctively crossed my fingers before everything going dark.
The Aftermath and the Diagnosis
When I woke up, it was still dark outside. I had no idea what time it was or how long I had been in surgery. My pain was different now, centred on a fresh caesarean scar. The anaesthetist came to see me and explained: my uterus had ruptured. Our baby had needed prolonged resuscitation and had been transferred to a tertiary hospital for intensive neonatal care. He held my hand. He looked both sorry and shaken. I was still under the effects of the anaesthetic and could not fully grasp what he was saying.
Then my partner was allowed in. His face was pale, broken. He told me what he had witnessed — the sounds of resuscitation echoing through the walls, not knowing if it was for me or for our baby. He heard them call “HRP” and, in panic, looked up placental abruption on his phone. He saw staff coming out of the operating room crying, fainting. He saw the OBGYN walk past, leaving footprints of blood down the hallway.
And he told me how long it took to bring our baby back. I remember thinking, “thirty minutes… he’s doomed”. It all felt surreal — none of it hit me. I was floating in a bad, hazy dream where nothing made sense.
I remember lying there, half-conscious, already spiralling. I even remember imagining getting a tattoo to honor him if he died — a heartbeat line near my c-section scar? The thought horrified me, but I couldn’t stop it. Fear had already taken over.
I called my family and my closest friends in tears. Those calls were the opposite of everything I had dreamed. Instead of “It’s a boy, he’s perfect!” it was “Something went horribly wrong.
Gradually, more details emerged. During the surgery, they had discovered a complete uterine rupture, heavy internal bleeding, and my baby was expelled into the abdomen. They had managed to repair my uterus, but I quickly understood that a future pregnancy was not guaranteed. Otto may be the only child I bring into this world, and he might not even survive.
The next day, once stable, I was transferred by ambulance to the hospital where Otto was being treated. Every bump in the road pulled on my fresh cesarean scar. When I finally arrived, a midwife helped with the formalities, and then my partner came to wheel me down to NICU.
I entered his room and the fact I had always wanted a girl suddenly seemed so dumb. My body filled with a sense of divine knowing, and I remember just thinking “but of course, it’s you, it’s always been you”, HE was the love of my life.
He was lying there, tiny and still, covered in tubes and lines, cooled to protect his brain from further injury. I felt an enormous guilt and sadness that his first days of life had already been filled with such trauma.
That night I cried, I didn’t want to eat, or sleep, I felt I had failed, and I just wanted to disappear. But the following morning, I woke with determination; my baby was still here, there was still hope, and he needed me. So I picked myself up and switched into action mode. I scheduled a consultation with the lactation consultant, inhaled my meals, drank as much water as I could and pumped regularly. I did not care about myself, but I cared for Otto, more than anything, and he needed me to be healthy and eat nutritiously to give him the best start. From then on, I never left his side for more than an hour at a time. My fingers were still crossed from the days before, and I kept them crossed, hoping for him to be healthy, even through nappy changes. I needed the universe to hear my plea.
Skin to skin was promoted in NICU for its benefits, and so when he was stable enough, we did as much as we could, around 8h a day between us, as many cuddles as possible in the hopes it would benefit him somehow.
As the days went by, there were small milestones that gave us hope: opening his eyes and watching us, gaining weight, holding our finger and being responsive. We were overjoyed and celebrated each moment, but were reminded by the doctors that all of these were archaic muscle movements, and were not correlated to his capacity for controlled motor movements later on.
The tests began. He had episodes of seizures, both on the monitors and visibly in his body, with convulsions and abnormal eye movements. He was started on antiseizure medication. We were encouraged to bring our parents to meet him, and it became more and more evident that the staff did not expect him to be leaving the hospital. I remember putting the pieces together, the way they spoke, the hand prints and photos they offered to take, they were preparing us to say goodbye.
The stress of NICU was intense. I had been twice to the ER, waking up in sweats, pain in my lower back, absolutely freezing in the middle of July, but they couldn’t find anything; it was anxiety from waiting for his results.
The first MRI showed concerning changes, but not the pattern they expected for a typical lack-of-oxygen event. We were told we would need to wait for a second MRI after some days to understand the full extent of the injuries. Those days were full of hope and dread.
The Hardest Decision
When the second MRI came back, the picture was much clearer – and devastating. The images showed extensive, bilateral brain damage affecting large areas responsible for movement and likely other functions as well. A multidisciplinary team, including neonatologists, specialists in paediatric neurology, and neuroradiologists, met to review his case.
The prognosis we were given was that if he survived, he would most certainly have severe cerebral palsy with very limited or no voluntary motor function, a high risk of severe intellectual disability, epilepsy, and a probable lifelong dependence on oxygen and tube feeding. He would need constant medical interventions and full assistance for every aspect of daily life. They spoke of “quadrapledgia”, “polyhandicap” and of a life marked by suffering.
The team’s recommendation was to move towards comfort care rather than prolonging invasive treatment. I remember that being the day I stopped crossing my fingers, I realised how useless it all was, how I couldn’t wish or love him back to health, how I had no control. At the time, it felt so cruel to have us meet and care for this perfect baby all to then take him away from us. Of course in hind sight we’re so glad to have even known such a love and to have the privilege of him knowing his parents and being loved.
I was shattered. The idea of leaving the hospital without my baby was unthinkable. I could not imagine deciding to let my child die. I begged for more time, for more opinions, for another scan. Our families and friends helped us seek outside opinions, sending the MRI images and reports to other specialists. We looked into stem cell testing across the globe. We searched for stories of children who had beaten the odds after similar predictions. We told ourselves we could accept disability, that we would dedicate our lives to caring for him, that we just did not want him to suffer.
As more information came back, we had to face the reality that his injuries were indeed extremely severe. My partner heard what the doctors were saying and, from early on, leaned towards not condemning our son to a life of pain just to keep him with us. I, on the other hand, clung to every tiny possibility. I would plead with my partner, telling him I couldn’t live without my baby. Finaly my partner told me, “We have to live a life of suffering so he doesn’t have to”. And it felt so unfair, I didn’t want to suffer, but I sure didn’t want him to. We needed to make the best choice for him, not me.
The team gave us a little time, but not endlessly. They reminded us that no parent is ever “ready” for this; it is simply not a decision a human being can feel prepared for. Eventually, after many conversations, tears and arguments, we accepted the recommendation to transition to comfort care.

Saying Goodbye
They removed the tube, and for the first time, I saw his whole face without any bandages. He was so beautiful. I held him against my chest while sitting in the chair, and my partner wrapped his arms around both of us.
Those hours were both precious and unbearable. Eventually, his tiny body stopped fighting. I felt the moment he left his body. People say he looked peaceful. I didn’t feel peace. I remember looking at his lifeless body, trying to take in every part of him, while simultaneously thinking that it was no longer him, he was gone. I felt something inside me tear open — A wound that will never heal. I remember not wanting to see him in that way, I wanted to only have good memories of him, alive and warm, I couldn’t stomach the reality of his death.
Letting him go is the hardest thing I have ever done and will probably ever do. But I do not regret being there, making sure he did not die on a table or in someone else’s arms. I created him, carried him, nourished him, and I accompanied him to his last breath. He died in our arms, covered in our tears and our love.

Navigating the Aftermath
In the weeks after Ottavio’s death, I disappeared into darkness. I spent days lying in bed, lights off, barely speaking. My mind looped endlessly through the same thought: I wanted more than anything not to be alive. People kept telling me how lucky I was to have survived, but for me, this was the worst outcome, I would have rather never woke up. I was told over and over that uterine rupture was rare, as if to justify it, but it changed nothing to the fact that I lost my only child.
My relationship with Otto’s dad was put under enormous strain. His father and I grieved differently. We loved Otto in different ways, and we suffered in different ways. Sometimes that brought us closer; sometimes it pulled us apart. There were fights, painfully hurtful words spoken in anger. Grief has magnified our differences in communication and coping, and drove our decision to separate.
I became obsessed with understanding what had happened. I read every case study I could find, searching for ruptures similar to mine. But the papers were few, the sample sizes tiny, the conclusions uncertain. I found myself wondering constantly whether I would ever be able to carry a viable pregnancy again, and whether anyone actually knew enough to guide me.
I found comfort in talking about my baby — speaking his name, telling his story, keeping him present in any way I could. I also found solace listening to others who had gone through similar losses. Late at night, I would scroll through TikTok, finding creators like Bex Bradley, Alexa Conlon, Katie Spinks, and Jeanne in Paris. Their stories made me feel less alone.
Eventually, someone mentioned a Facebook support group for uterine rupture survivors. When I joined, I discovered thousands of women who had experienced a rupture. Thousands.
I read story after story—so many painfully similar to mine: the same symptoms, the same descriptions of pain, the same failures to escalate care. I remember thinking, this isn’t as rare as we are told.
In that moment, I realised these experiences weren’t just stories. They were data—data that could help identify who is most at risk, recognise shared warning signs, and ultimately save lives if finally taken seriously.
That idea stayed with me. I created a survey, thinking that if I reached 50 responses it would already surpass the tiny studies I had read about. Then we reached 50, then 100, 200, and now over 300 entries. I wrote an initial report and presented it to obstetric professors who have since offered to help publish the findings.
During this time, I began speaking more with Becca, who was an admin in one of the support groups. Her kindness during those dark weeks made me feel less isolated, and hearing she too had similar thoughts and feelings made me feel less ashamed. She became one of my strongest supporters, especially when it came to spreading the survey and raising awareness.
Eventually, she shared her vision of creating a foundation, and asked if I wanted to join her and Amina in building it. I didn’t hesitate for a second. We shared the same grief, the same determination, and the same belief that our babies’ stories could change future outcomes.
Joining forces felt natural — almost inevitable. And together, we’ve created a resource that we are incredibly proud to bring into the world: something born from pain, but built for purpose, connection, and prevention.
Even though my grief is still raw, and I carry a deep sense of having been failed at a moment when my son and I should have been protected, I have made a conscious choice to remain factual and fair. I continue to trust medicine and to hold great respect for those who work in care. I also know that no healthcare professional ever wants this to happen to their patient, and that these events leave lasting marks on them too.
I truly believe that safer outcomes for mothers and babies will only come from working together. When patients and healthcare professionals listen to one another, learn from these experiences, and support one another, we can create change that protects everyone involved.
I can’t bring Otto back, but I can bring awareness.
And maybe, through that, I can bring another baby safely home.
Pour toi mon petit coeur, Otto, je t’aime.