Rupture Support
Finding community, comfort, and connection
Experiencing a uterine rupture — whether you survived personally, witnessed it as a partner, or lost a child to it — can leave lasting physical and emotional scars.
Many families describe feeling isolated, misunderstood, or fearful of future pregnancies.
Connecting with others who have lived similar experiences can bring strength, understanding, and validation.
This page lists online spaces and organisations where families affected by uterine rupture and its consequences can find information, peer support, and hope.
These links are provided for awareness only — they are not endorsements, and each family is encouraged to decide which community feels right for them.
Facebook Groups
Many uterine rupture survivors find comfort and guidance through private or moderated Facebook communities.
They provide spaces to ask questions, share stories, and connect with others around the world.
Uterine Rupture Awareness & Support
– Open to all those having experienced rupture, dehiscence, or being at risk of one and wanting to share experiences or worries and concerns.
Hope After Uterine Rupture
– Global group for women who have experienced rupture or dehiscence.
Pregnancy and Birth After UR / Baby loss support group
– For those having lost a child from rupture
Double loss: Navigating Infant and Fertility Loss
– For those having lost a child and their fertility from rupture
Hysterectomy to survive complication of pregnancy
– For those having had a hysterectomy
(All groups are independently run and may have their own membership requirements.)
Baby Loss Support
For parents grieving the loss of a baby after uterine rupture, stillbirth, or neonatal complications.
SANDS (Stillbirth and Neonatal Death Society) – www.sands.org.uk
Provides bereavement support, remembrance initiatives, and professional guidance for families and healthcare providers.
STAR Legacy Foundation – https://starlegacyfoundation.org
Community to honor babies, inspire prevention and support families
The Finley Project – www.thefinleyproject.org
Provides a lifeline for mothers in the days after infant loss through a program that supports each mother physically, emotionally and spiritually at no financial cost to them.
Petals (UK) – www.petalscharity.org
Offers specialised counselling for baby loss and traumatic birth.
Naître et Vivre (France) – http://www.naitre-et-vivre.org
French association supporting parents after sudden infant or perinatal death.
HIE Support
For families whose babies suffered Hypoxic-Ischemic Encephalopathy (HIE) due to uterine rupture or other birth complications.
Hope for HIE (Global) – www.hopeforhie.org
The leading international foundation offering peer support, resources, and education for families affected by HIE.
The Children’s Trust (UK) – www.thechildrenstrust.org.uk
Provides rehabilitation and family support for children with acquired brain injuries.
United Cerebral Palsy (UCP) – http://www.ucp.org
Supports individuals and families living with disabilities linked to early brain injury.
Fondation Paralysie Cérébrale (France) – http://www.fondationparalysiecerebrale.org
Promotes research and offers guidance for families affected by cerebral palsy and neonatal brain injury.
Disclaimer
All links and references on this page are provided for informational purposes only.
The Uterine Rupture Foundation does not endorse, moderate, or verify the content or policies of external groups.
Support groups vary in approach, moderation, and tone; each individual should decide which community aligns best with their needs and comfort level.